Cephalic Disorders

[livingwith]

Our beautiful daughter, now 6 years old was born apparently normal. Following delay in developmental milestones, speech delay etc she was said to have a learning disability and global delay. Motor issues were also identified.
At 3 1/2 years following the onset of seizures and an MRI Scan she was diagnosed with double cortex syndrome - apparently a very rare syndrome. We can only find medical information. We would love to talk to some other parents in our position.
She is a fantastic little gir...Read the full article